Writer, researcher, music lover, cancer survivor with CMMRD ("double" Lynch syndrome)

Tag: thoughts (Page 1 of 6)

Editing Your Life With Jay Z

Driving the 20-30 minutes home from my parents’ house tonight (which is always lovely, in the dark – very contemplative), I stumbled upon an interview with Jay Z from when he was in the Live Lounge on Radio 1. I must admit I wasn’t sure who it was at first, but he said some things that really resonated with me so I thought I’d hammer out a quick blog post about it before going to do a bit of my jigsaw puzzle (also quite relaxing and contemplative). I haven’t listened to much Jay Z in the past but halfway through the interview they played one of his songs with Linkin Park – Numb/Encore and I did have a bit of a sniffle at that because he dedicated it to Chester, it being the first time Jay Z performed it since Chester died. And having Linkin Park play unexpectedly does seem to have that effect on me since his passing. That, and I don’t think I have let out some of the things that have been happening family-wise lately, so it was good to get a bit of it out.

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I feel the same way about people liking me and wanting to spend time with me as I do about people speaking in Swedish: I accept it, I love it, but I don’t really understand it.

everything is loud

When you message your friends back like “all good” but nothing this week has been very good, it just takes more energy to talk about it than it does to lie at this point

and the drink isn’t blotting out the week nearly enough

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Five ways I have seen myself today

Still got health stuff to sort out which I’ve asked my doctor for a referral for. Nothing major but I’m sick of dealing with it every time it flares up and at the moment it just seems like it’s one thing after another to deal with, constantly, all the time.

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I don’t think I have ever been so stressed out about going for checkups before.

I don’t know why this time feels so much worse. I don’t even like being distracted because every time the distraction goes away it’s like waking up from a good dream and remembering that everything is shit. Actually, those couple of minutes when I’m just waking up are the best part of the day because I’m still half asleep and haven’t yet remembered anything.

But I’ll be out with friends and family on Thursday night. And Friday is basically a day off work, taking some drugs in the morning, and spending the rest of the day on the sofa watching Netflix. And hopefully everything will feel better and I’ll be back to my normal self. Because these past few weeks have not been fun at all.

We’re Making The Right Choices

Whenever someone says they don’t have a choice about something, I always think, well there’s always a choice – no matter what the subject matter is. You can just do nothing. You can sit still, hole up, you can struggle or not struggle, whatever situation you are in. You can keep hoping or lose hope. You can try or not try. You can keep going or give up.

So the other day when I was thinking about how I deal wih being a cancer survivor and I thought ‘well I have to deal with it, I haven’t been given a choice or been asked if I wanted it or not’, I immediately thought – as an involuntary reflex – ‘you always have a choice’.

So I thought about it, and I’m right. I don’t have to do the things that I do. I don’t have to go to screenings or checkups, and I never had to go along with genetic testing. I don’t have to do anything at all, ever. I could just bury my head in the sand, but I don’t. I’m making the right decisions. I’m doing as well as I can in the circumstances. I have a choice and I am making the right choices. And if you’re going to checkups, and monitoring yourself, and keeping on top of all your health-related stuff. you’re making the right choices, too. And I think that’s a little bit affirming. A little something to hold onto.

Positive Thoughts!

Next Friday I’m going for my checkups and I’m trying to be positive about it, so this is a post to say that it’s good to have checkups. They’re just checkups – it doesn’t mean anything bad is going to happen, it just means if anythng bad did happen it would be dealt with quickly, so it would be less of a problem.

And I have the day off work, and my boyfriend is taking me to the hospital and has the day off too, so we can spend the afternoon on the couch together, and we’re going out for an early Valentine’s day, shopping and dinner on the Sunday, which will be good, so it might just turn out to be a nice long weekend.

I’m sick of feeling messed up by this stuff. Positive vibes, positive vibes!

Disappointing packages

It’s been a stressful week.

I just realised it’s only Wednesday.

Well, shit.

Well, no, it’s actually okay now. Basically I went to see my consultant in October and he said he would send me for a gastroscopy in January, but not bother with a sigmoidoscopy this time around. At the end of December I got an appointment through for this coming Friday.

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I’m scared

Got my annual gastroscopy coming up next Friday. Been thinking about it for over a week already and there’s still eight days to go. I think it might make it easier if I admit to being scared and make it really obvious. What’s the point in hiding it? It’s normal to be anxious. So.

I’m scared. I’m worried about what the outcome will be. I am scared and that’s normal.

If you have a scan or a checkup coming up soon too and you’re scared, it’s okay. You’re allowed to be scared. Give yourself a break. Let yourself be. The waiting is the worst bit. (Actually, the gastroscopy itself is rubbish too so it’s all crap really, but whatever.) The waiting is hard. But do what you can. It is what it is.

Look at me, talking like I have all the answers. I don’t know any better than anyone else. i’m just trying to get by, and thinking that maybe admitting fear exists makes it a tiny bit smaller somehow. It’s okay to be scared, and it’s okay to be honest about it. There is no shame here, only truth. I’m scared and that’s normal. I’m scared, and that’s normal.

Concentrate on the things you do know

I was trying to figure out if I have anxiety or ptsd or what, because all this health stuff makes me feel crazy. And I don’t think I have ptsd because I don’t think the medical definition of ptsd applies to me. Plus, it feels like things aren’t over, but they’re still happening – because of having to go for checkups, etc. So maybe it’s not ptsd because I’m not just struggling with the past but worrying about the future.

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