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Sam Rose - writer, geek, music lover, cancer survivor, optimist, Buddhist.

Being a Cancer Survivor During COVID-19

Being a Cancer Survivor During COVID-19

I’ve been wanting to write something for a little while but haven’t really known what to say or where to begin. I was up half the night with trapped wind and slept in two hour blocks for maybe six hours total. After going to bed at about half eleven, I drifted off at about half one and was up every two hours either going to the loo or taking Rennies and pacing our small kitchen trying to get my wind up. When I woke up at 8.30am I decided I’d rather get up than try to have a lie in, because the wind and pacing and not sleeping reminded me of the days and weeks after surgery. So, not cool.

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sofa snapshot

chocolate shared on the sofa
maroon flowers emerald
leaves velvet texture
one lying down the other tiny
curled at his side a memory
or a photograph or a figment
of the imagination

I don’t know

New Year Reflections – 2019/2020

It’s the time of year when I normally get very introspective (yes, more so than usual) and productive with my writing, and these two things mean I write something about what I’ve done this year and what I want to achieve next year. But having had cancer not so long ago makes that tricky – and the expectations I have for myself that it shouldn’t be tricky, make it trickier. Are you with me?

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One Year NED!

I have such a happy update today!

When I had my routine CT scan in August (ish) it didn’t come back clear, so my consultant sent me for a PET scan. That didn’t quite come back clear, either – it showed a 7mm lymph node growth, so my consultant said I should have an MRI and an ultrasound guided needle biopsy to take a closer look at it. I had the MRI in September and yesterday I almost had the needle biopsy.

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How much of a difference can you make on Wear It Pink day?

It’s Wear It Pink day today – a day when people wear pink to raise awareness for breast cancer and the charity Breast Cancer Now. The idea is to wear pink for the day, donate to the charity, and put on or take part in some sort of sponsored event to raise money – like a bake sale or a run and so on. But I do wonder how many people throw on a pink t-shirt and think “okay I’ve done my bit, I’m raising awareness now”. I know lots of people like this stuff and I might be on my own here, but I’m not too keen on participating in these sorts of things – which is why you won’t see me wearing pink today or going to a charity coffee morning in September. There are a lot of emotional aftereffects of cancer, even for years after remission, and if something is going to throw the disease in my face I want it to be really worthwhile. Charities do a lot of good and when lots of people donate money due to the attention the charity receives on days like this, it can really make a difference and my emotional issues and avoidance tactics aside, I think the work charities do and the attention they receive is great and very important.

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Keane at Royal Albert Hall, 28th September 2019

Keane Royal Albert Hall 28th September 2019

Alternatively titled “I’m not crying, you’re crying”.

My mum and I went to see Keane at Royal Albert Hall last Saturday, and it was possibly the best gig I have ever been to. Background: I’ve loved Keane since I first heard Somewhere Only We Know in 2004 when I was 16. I loved Keane back then when I was known as a greb (greebo, emo, goth, type thing) listening to Linkin Park. I loved them while I was seeing so many other artists – Alicia Keys, Green Day, Bon Jovi, Slipknot, Bring Me The Horizon, and while I was listening to the music my dad got me into – various Motown and 1960s-80s rock bands. I’ve loved them all the way through to present day when my playlist is mainly made up of Post Malone, French Montana, Giggs, Drake and whatever else I hear and love on Radio 1. Keane have been a constant – there’s only one album I don’t own, I love their sound, and I have been waiting for years for them to come back (after their seven year hiatus) so that I could see them live.

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Life and Work and Family and Trees

All the leaves are changing and nothing is changing and maybe everything is changing. My mother sings California Dreaming while she stands smoking at the kitchen window, just the first two lines, nothing more, she doesn’t know the rest – sometimes softly to herself, sometimes with vigour, with an excitement about the sky being grey, whether or not it really is. Sometimes I look in the mirror or catch my own mannerisms, think about my ways, and realise I am becoming her a little and I love it. I talk like my dad. I tell people to pack it in and stop mithering and find myself repeating sayings I assume are a bit northern and explaining it away with as my dad would say. My family is the best family to ever exist and we don’t need to be perfect because nobody is – I can only emulate the best people I know, and they are the best people I could emulate because they never left. Others left and said they had come back but they haven’t, not really.

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High, High Hopes

I had my gastroscopy on Friday and it was the best endoscopy experience I’ve had so far – not least because the only thing I remember (thank you, sedation) is my doctor straight after the procedure saying “nothing serious”. As a result, I’ve had an extremely relaxed weekend.

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