Sam Alexandra Rose

Writer, researcher, music lover, cancer survivor with CMMRD ("double" Lynch syndrome)

Page 19 of 45

Walk in the Park

I had a dream we were going for a walk in the park
because that is what he enjoyed doing.
I don’t know if that is really true.
He might have hated walking. 

They wanted me to come on the walk.
Mother, my niece, my nephews.
The kids saw it as a nice trip out.
Everyone easy-going.
I was not part of any of their experiences,
caught somewhere between being a
sibling and a stranger.
He mattered too much and not enough.
Here and not.
Known and not.
Mine and not. 

I didn’t want to go on the walk,
or be with any of them
so while they got ready
I stood in the kitchen for ages
leaning on the countertop,
eyes glazed over, my blank stares
making the refrigerator feel uncomfortable.
Mother just laughed at me and asked
why I stood there for so long.

Stockholm Trip!

I am currently halfway through a trip to Stockholm so I thought instead of just posting bits and bobs on Twitter, I would write some posts for my blog, and what better time to start than when I’m drunk in a hotel room eating chocolate?

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I feel the same way about people liking me and wanting to spend time with me as I do about people speaking in Swedish: I accept it, I love it, but I don’t really understand it.

Stockholm Weather Report

The weather in Stockholm is so changeable
I can’t rely on anything here so
I must change too
I don’t even speak half the language.
The city centre rain waits until I reach
my room before it pours out its
promises
It brightens as it dries, brightens
after it has tried,
brightens after it has made a difference.
Meanwhile I sit conflicted;
happy to have travelled but looking
forward to home
happy to share experiences but
hungry for being alone with the
work I long to do.

I keep forgetting where we are not and
remembering where we are.
I hear words that suggest people see
worth in spending time with me
But I can’t see why they would.
I don’t know what they get out of this.
I don’t know what anyone gets out of me.
I think I just forgot.
Self-doubt is so unattractive
but in my lifetime I must have changed
from what I promised
like the Stockholm weather forecast.
Changed without noticing, changed from
what I thought I was and now
I don’t know what I am.

One day soon I will try something that
is just for me, and I will succeed,
and from then on that is all I will
ever need to do.
And on that day I will be powerful and
I will be found, never to be lost again.

Are Labels Helpful?

This week I am thinking about the labels we put on ourselves, the labels other people put on us, and the labels we want. Partly because today is PTSD Awareness Day, and partly because a colleague is celebrating a different diagnosis that has given him relief and closure.

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this is not getting over it

I can’t let go because it isn’t over
I can’t let go of something that is
determined to stick around.
and if it has formed part of my identity
that is nothing to be ashamed of
that is nothing to be concerned about
that is nothing to be fixed or talked out of
that is nothing I should try to change.

this is cemented now
this has driven me demented long
enough now
enough now with the moving on
it moves with me
enough now with staying strong or
breaking down
whatever I will be, I will be

I will not let this go because
this will not let go of me

Title inspired by “This Is Getting Over You” by Alkaline Trio.

My mantra today is “hey, at least I wrote something.”

Forgo

my mouth forgoes feelings
so I can feel everything else
the roof of my mouth goes numb
so I can envelop myself
in self-medication
a vacation
for the senses,
a sensible
meditation,
a softening
of the edges.

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