In case you missed it, here is the video from my YouTube live for the launch of “the CMMRD book”!
Category: Publication Notices
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Out now: the CMMRD book!
the cmmrd book: a mismatch memoir and guide
Memoir and guide, released September 2023
I am pleased to announce the publication of my latest book, the CMMRD book!
About the book
“CMMRD may be rare, but everyone I know has met someone who has it.”
While on average people with CMMRD get their first cancer diagnosis at just 7.5 years old, Sam Alexandra Rose is beating the odds in her mid-thirties. But it comes at a price, with three cancer experiences and a whole lot of fear and trauma to sort through.
Part memoir, part guide and with a little poetry thrown in, this book illustrates what it’s like to live with a rare genetic condition and significantly increased cancer risk.
This is a book of denial, hope and eventual acceptance, ideal for families wanting to know more about a CMMRD diagnosis and for healthcare professionals looking to better understand the patient experience.
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Coming soon: the CMMRD book!
I’m so excited to announce that my new book will be published on 2nd September 2023! It’s called the CMMRD book: a mismatch memoir and guide and it’s all about my ultra-rare condition CMMRD, what it is, what it means for me and others who have it, and how I am learning to come to terms with it. It’s the first book all about CMMRD just for patients – and maybe even the first book about CMMRD, ever. Here’s the blurb:“CMMRD may be rare, but everyone I know has met someone who has it.”
While on average people with CMMRD get their first cancer diagnosis at just 7.5 years old, Sam Alexandra Rose is beating the odds in her mid-thirties. But it comes at a price, with three cancer experiences and a whole lot of fear and trauma to sort through.
Part memoir, part guide and with a little poetry thrown in, this book illustrates what it’s like to live with a rare genetic condition and significantly increased cancer risk.
This is a book of denial, hope and eventual acceptance, ideal for families wanting to know more about a CMMRD diagnosis and for healthcare professionals looking to better understand the patient experience.
“a humane and helpful navigation of a difficult subject for a difficult journey… this book is a non-medical person’s true north guide through Lynch syndrome and CMMRD” – Lynne Dunn, CEO of Bowel Research UK
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I Won Second Place in a Writing Contest!
This happened a little while ago but my prose piece has just been published, so I can now reveal that I won second place in a writing competition! The contest was Flatten The Curve from STEMag, an interdisciplinary arts and humanities publication.
The piece I entered was a “found prose” piece, “Decommissioning of the Womb”. I assembled this piece by putting together found writing on the decommissioning of nuclear reactors and oil platforms, and reframing them into prose about having a hysterectomy. You can read it here. Many thanks to the editors for choosing me – I’ve never won a prize for my writing before!
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My 2021 Year In Review and Goals For 2022
It’s that time of year again! I love this period in between Christmas and New Year when nobody knows what day it is and I don’t have to do anything at all. What I do usually decide to do is take a little time for reflection and introspection, and part of that is thinking about what I’ve achieved this year and what I’d like to do in 2022. So let’s go!
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Gut Feelings: Coping With Cancer and Living With Lynch Syndrome Out Now!
My memoir Gut Feelings: Coping With Cancer and Living With Lynch Syndrome is out now on Amazon!
“Lynch syndrome is a genetic condition that makes it more likely for a person to get cancer. In other words, it’s the world’s worst loyalty programme.”
Colon cancer, uterine cancer, duodenal cancer. Colostomy bags, infertility, genetic testing. But also, joy. Also adventure. Also grit.
GUT FEELINGS spans ten years from the author’s first diagnosis to the life-changing surgeries for her second and third. Racking up a collection of medical experiences – and losing countless organs along the way – Sam Rose has stories for anyone facing the uncertainty of cancer or Lynch syndrome, to help patients and survivors feel less alone.Gut Feelings in the Media
An extract from my memoir is available on the Bowel Cancer UK website.
I appeared on The Hope-Makers Podcast chatting to Erica Bowen about my book and my experiences.
I wrote an article about the writing of my memoir for Lucy Turns Pages.
Part of my story appears on the Womb Cancer Support UK blog.
In March, I’ll be on an episode of Radical Care Podcast.
Gut Feelings is out now in paperback and on Kindle at Amazon!
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Guest Appearance on WhyMe with Vera-Lee Podcast!
Earlier this year I was invited to be on the WhyMe with Vera-Lee podcast, and the episode has just been released!
During the episode, we talk about my three cancer diagnoses, Lynch syndrome, my PhD research and my writing. Vera-Lee and I had such a great connection, and I loved our conversation. Give it a listen and let me know what you think! I’m happy to talk about any issues brought up in this episode.
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My 2020 Publications
As is customary, here is my end-of-year rundown for 2020. I published 16 poems/prose pieces in 13 literary magazines and anthologies, as well as four articles/guest blog posts.
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Pre-order My Memoir On Kindle!
My Lynch syndrome memoir Gut Feelings is now available to pre-order on Kindle!
If you like your books in electronic flavour, pre-order now and my guts will be spilled onto your device on the official release date of 7th February 2020!
Here’s the blurb:
“Lynch syndrome is a genetic condition that makes it more likely for a person to get cancer. In other words, it’s the world’s worst loyalty programme.”
Colon cancer, uterine cancer, duodenal cancer. Colostomy bags, infertility, genetic testing. But also, joy. Also adventure. Also grit.
GUT FEELINGS spans ten years from the author’s first diagnosis to the life-changing surgeries for her second and third. Racking up a collection of medical experiences – and losing countless organs along the way – Sam Rose has stories for anyone facing the uncertainty of cancer or Lynch syndrome, to help patients and survivors feel less alone. -
Publication Notice – Vamp Cat Magazine
I have two poems out in the new issue of Vamp Cat Magazine! This issue has the theme of wanderlust, so my two poems are suitably travel-related. The first is about visiting the seaside with a friend, and the second is about driving to see family at Christmas as a child. You can read them here.
I’m so excited to announce that my new book will be published on 2nd September 2023! It’s called the CMMRD book: a mismatch memoir and guide and it’s all about my ultra-rare condition CMMRD, what it is, what it means for me and others who have it, and how I am learning to come to terms with it. It’s the first book all about CMMRD just for patients – and maybe even the first book about CMMRD, ever. Here’s the blurb:
