Writer, researcher, music lover, cancer survivor with CMMRD ("double" Lynch syndrome)

Tag: writing (Page 7 of 7)

The Party

I didn’t want to go to the party, but Tommy made me. Tommy makes me do a lot of things and I don’t always like them, but sometimes I do. I can’t believe how many things he has forced me to do in such a short space of time. Though forced is such a strong word – it sounds bad. It sounds like abuse, and having no choice. I always have a choice. I don’t believe it when people say they don’t have a choice. You can always run away from something. You can always just do nothing. Unless someone has you tied up in a room somewhere so you can’t move. But even then you have a choice – you can try, or not try, to escape. I have never wanted to escape from Tommy.

Tommy wrote a list. He wrote a list of all the things he wanted to do, and he said that I could help him. He said it would be fun. Sometimes I trusted him. Sometimes I wanted to tell someone else about what we were doing, but he made me promise that I wouldn’t tell anyone anything about us. The things we did.

The night of the party, we were drunk. So very, very drunk. He found out about the party through a friend, and we were drunk before we got there. We didn’t realise how drunk we were until it hurt the morning after. It was a birthday party, I think. I can’t be sure. It could have been a christening, but I’m not certain. It was so late at night. We showed up late. People were sprawled on the floor, people were upstairs, downstairs in the kitchen, the bathroom, the garden. I can’t remember the last time I saw so many people crammed into such a tiny house. Tommy headed straight for the punch bowl and I followed him. I followed him everywhere when I was with him because I didn’t know anyone in the places he would take me. He was a bad guy, people used to say. They don’t say that anymore. Nobody says anything to us anymore. Not after the party.

We stayed for a long time. Nothing really happened for the first few hours. Some people left. Some crashed out on the couches, nestling their faces in the crevices of each other’s bodies – the nape of the neck. Armpits. Top-and-tailing. Anywhere where they could get a space. If they hadn’t passed out they were doing something else entirely different in whatever dark corner they could find. Or not. Tommy said we should do it too, but not tonight. I said it was my first house party, and he told me not to worry, that there would be more.

I believed him. I believed everything that came out of his mouth – those thin lips, usually cradling a cigarette, much like the one he dropped in the bedroom at that house. The one I forgot to mention to him right after he dropped it because I was so drunk. Then when he started fumbling in the dark, I saw the spark out of the corner of my eye, but I still didn’t realise what was happening. The orange glow on the floor disappeared as we slid under the duvet. But as soon as we came up for air we saw and we turned and we ran. We ran so quickly. The house was ablaze with all those people inside but we didn’t stay to find out if they all got out. I believed everything Tommy said. He said one day we would forget about all of this. I believe that, too.

A Rap

I found a rap I wrote two years ago! The only rap I’ve ever written, in fact. So I thought I’d edit it and post it here – edit it because it was a bit rough, and post it because even though it was written two years ago I still feel more or less the same. Talk about lack of progress!

The rap is about something that I write about quite a lot – more for my own sanity than for anything else. The extremely short summary is that in 2010 I had my bowel removed due to bowel cancer, and since then I’ve found out that there is something in my family called Lynch syndrome, which is a hereditary condition that makes it more likely that a person will get certain types of cancer at some point in their lives. Cue plenty of screening. On the face of it, reading this potted summary, maybe it sounds like it should be no big deal – I had the offending organ whipped out, everything has been okay since, and the whole genetics situation is being monitored. It’s not that simple. Sometimes – not all the time – it’s really hard to deal with, and I struggle with fear, anxiety, flashbacks, and on top of all that, judging myself for it. I’m trying to work on that last one. So, I write.

I’ve gotten to a point where I’ve been wrestling with whether to shut up and try to forget about it and avoid thinking or talking about it, or to accept that it’s now a part of me and the way I define myself as a person, and be okay with that. I’m trying to do the latter, because it’s going to stay with me whether I like it or not, so better to control it and own it than to make myself feel bad about the way I feel. Yes, I feel like this. Yes, this is me now, and yes, this is how I express it. So here’s the rap:

I’m a little bit more Santa’s grotto than ghetto,
‘Til you see the thoughts in my head I find so hard to let go,
So many feelings I can’t control in my mind’s shadow,
The darkest crevices are reserved for those dark demons
That raise their heads, race out, take over, there’s no freedom
For anything else to enter when everything else is devoured,
All peace of mind eaten even after all this time,
Maybe I exaggerate, maybe I just want people to know,
Maybe if other people think about it too – maybe then I’ll let go. 

It’s taken all this time just to open up and own it,
I’ve had all the encouragement in the world to clam up and not show it,
I don’t know what people think, maybe I should have outgrown it,
But I gotta talk about it cuz I don’t know what else to do with it,
Where I do put this thing, put it in a box, hide it out the way?
I’d just get up and open it, stare at it every day,
Well what would you expect, if you went through what I did?
Would you just pick yourself up, say ok, never mind, or would you hide?
Would you try so desperately to get rid of all these thoughts,
Wear your body out, I don’t know, take up sports?
I don’t punish my body enough for what it did to me,
Get up on the treadmill and sometimes just feel like screaming,
“You did this to me”, these scars, although I learn to love them,
I really wish they were gone, wish they had never come to be,
Wish you had never visited me,
I wasn’t expecting this, one in three but never happening to me,
First you take my brother, if you think you’re gonna take me too you’re wrong,
Rid me of a sibling I’d never even known, never will know, will never understand
All the pain of my family like I’m just an outsider,
Do you remember when – no
He always used to say – no
Shut up, I can’t hear this, all the things they know, I can’t listen to,
So come on and tell me what I’m supposed to do when you try coming for me too,
I just punish myself, punish my body for failing me,
Even though I dig these scars eventually, they make me me,
On second thought, I don’t always mind this, gotta say I’m getting used to it,
Found my cross to bear, sure makes me angry but I’ll take the hit,
Don’t know what I’d do if it happened again, the same I did the first time round,
People say I’ve been so strong and brave, I didn’t let it drive me underground,
But what else do you do? I didn’t do a thing you wouldn’t,
I don’t see what other options there were, I couldn’t
Imagine it going down any other way
I don’t have super human powers, it just ended up this way,
Just by luck, by chance, there’s no fate or destiny,
No miracles or oh, this was all just meant to be,
I’ll take my pride and walk away, take this as a part of me,
Show everyone what I’ve been through and I don’t care who sees,
Maybe it’s attention seeking, maybe I need an outlet,
But since it’s sticking with me I won’t let anyone else forget.

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