Sam Alexandra Rose

Writer, researcher, music lover, cancer survivor with CMMRD ("double" Lynch syndrome)

Page 36 of 45

sympathy for sciatica

Isn’t it interesting how we can talk to and sympathise with each other about bruises, broken arms, accidents and so on, but we can’t do the same with things we really need to talk about, like life-threatening diseases? I stepped on a plug last week and spent the following days walking around like a drunk hunchback in slow motion. It hurt. A lot. But I didn’t really mind at all. So that’s where this has come from.

I don’t want
sympathy for sciatica
because I know what it is
and it’s not much to me 

and what’s all the fuss over a foot?
A bruise, a cut, it’s nothing much –
soon it’ll be nothing to me 

I don’t need tuts and shaking heads
for being unable to drag my leg out of bed 

Anything I can see is no real issue to me –
a twinge is no big deal
and pain is okay to feel
if I know its rhyme and reason 

But fear is the worst pain
Fear is the sharpest stab in my side,
the most familiar ache 

I would welcome a broken arm instead
A fracture is just that – a fraction of a problem 

So I don’t want sympathy for sciatica
I don’t need support because of my limp
or anything solved by sitting down

because none of that will drive me underground

neck

what if we were never in a tunnel
and the light was just a lie we were told
to make us keep walking?

what if that burst of morning
was something they were holding
just out of our reach?

what if they watched as you ran
on that treadmill, as you
racked your brain for a lost memory
when you fought their grasp
when you held your head

when you were just trying
to remember
the softness of a neck

the way the crow flies

I am tortured by the things I said I would do.
The list of things is mounting up,
things I said I could do that I just can’t,
things I wanted to do but was apprehensive of.
Where has my resolve gone?
Why no sense of urgency?
Which way does the crow fly now?
It zig-zags, taking any diversion it can.

the amount in which I miss you
is matched only by how ridiculous
it is that I miss you
and the certainty I hold that
it doesn’t bother you

how does the weatherman feel?

how does it feel
to be so very afraid
that every dark cloud
will summon a monsoon? 

how does the weatherman feel
when he sees the hurricane coming
but can do nothing about it? 

how does it feel to know
that every leaden sky
could bring news just as heavy? 

how will it feel when the
first raindrop rolls down the
side of your face like perspiration? 

how will it feel to suddenly be
in the eye of the storm?

I wish I didn’t know.

how to be me

be terminally honest
different to the point of a fault
while also
indifferent, somehow

be genetically and wholly unabashed
be careless and
care less
and want
and be so, so impatient
and impulsive –
tell yourself it’s
a good combination

love yourself
try
even when you don’t
give yourself a reason to

be shameless
know fear as a terrifying tool
open up like a lotus flower
or a bulging trash can
better out than in

talk to yourself
repeat things to yourself
get some good responses
appreciate yourself

don’t change

be unabashed

bouncing

Yes, okay, I am
emotionally vulnerable –
and what?

I am tired.
Tired from bouncing from happily
oblivious to
diving headfirst into this minefield;
from straining to ignore this
and just being,
to taking ownership and weathering it and
raising awareness of it. I am tired
and I don’t know which way I will
bounce next.

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