Sam Alexandra Rose

Writer, researcher, music lover, cancer survivor with CMMRD ("double" Lynch syndrome)

Tag: personal (Page 1 of 6)

Post-checkup Check-in – Diagnosis: Happy

March 18, 2019 / / 0 Comments

Hello! Life is really nice right now. I’ve started back at work part-time and I’m enjoying it. The dress code changed so we can wear casual clothes. I’m looking forward to a couple of weekend trips away with my boyfriend. I’m thinking about doing a PhD. I was anxious last week because I had a phone call on Tuesday asking me to go in for my annual flexi sig on Friday and that was like, no time at all to get used to the idea. But I went and they said my internal pouch is healthy. There’s nothing like that kind of relief.

Continue reading

Update: 28th December

December 28, 2018 / / 0 Comments

Hello! It’s been a while, hasn’t it? I thought an update was in order as I’ve been off the grid for a bit, so here we go.

I had my Whipple surgery on 7th November. It was eight hours long. It would have been six hours but they had to spend the first two just dealing with adhesions from previous surgery. Then I was in the HDU (high-dependency unit, a bit like ICU) for three days – I don’t remember much about that time. And then I was on a regular ward for eight more days.

Continue reading

Update: Op #2 Incoming

October 12, 2018 / / 0 Comments

Have another life update blog post, because that seems to be all I’m good for at the moment. Having said that, I have written one or two poems, but while I previously posted a lot of them on my blog and didn’t leave many for submitting, I now seem to be swinging completely the other way. I promise I will post some new poetry on here soon.

Anyway, I’m updating today because I had an appointment with the surgeon who will be doing my whipple procedure. I’m one month post-hysterectomy, and I’ve been passed over from gynae, who have said no further action is required from their side of things. My stomach is still a bit sore especially if I’ve been particularly active, but I’m going to try driving tomorrow, and I’ve come a long way.

Continue reading

Update: 23rd Sept 2018

September 23, 2018 / / 0 Comments

Hello world! (because apparently all my tweets and posts now have to sound like the start of a Visual Basic programming lesson.) I had my hysterectomy on Wednesday 12th September and came home on the Saturday, so I’ve been back for just over a week. I’m feeling really good today. The beginning of this week, the first few days of being at home, were horrendous. It hasn’t even been pain related to the wound, but sickness, wind and lack of appetite due to all the moving around of the bowel (or pouch, in my case) that they have to do. So the first few days were really hard and dark, and it felt to me like I wasn’t going to get better and everything was horrible. But things improve quicker than you realise they are, and last night I slept through the night in my bed without getting up to go to the toilet just to relieve myself of horrible wind pain. My appetite is coming back, I’m eating more, and here I am sat in my usual chair tapping away on my laptop.

Continue reading

Update – 31st August 2018

August 31, 2018 / / 0 Comments

Throwing on Disenchanted by My Chemical Romance and getting all these words out here super quick just for the sake of keeping this thing and you people, whoever and however many you may be, updated.

I’m having a hysterectomy (and ovaries removed) on 12th September. We can’t collect and freeze eggs first because that process might cause the lining of the womb to grow. So I won’t be having any biological children. I’m sure I’ll deal with that later.

Continue reading

Tests, tests, and more tests

June 17, 2018 / / 0 Comments

Hello! This is a quick update on my health situation. (I realise I always say “quick update” and it ends up being several paragraphs long.)

Since my last update three weeks ago I have had:

– Capsule endoscopy
– Hysteroscopy under general anaesthetic
– MRI scan (today)
– CT scan (today)

Continue reading

Just a dream

June 7, 2018 / / 0 Comments

I was sitting in my living with my boyfriend and our mutual friend, and the postman came to the back door near where we were sat and put some post through the letterbox and it was a hospital letter for me. But it had some stuff written on the envelope so I didn’t need to open it to know it was bad news. It had a couple of things written by different people on it and it said I had thirteen small brain tumours but the doctor I had was very good and it was probably going to be okay. I didn’t open the envelope to see what the letter inside said they were going to do about it. My boyfriend was wandering around the flat doing something else and my friend was sat next to me – I was sat on the sofa feeling that I couldn’t go on and I might as well just end it now because that would be easier and I was crying and sort of screaming quietly, making some sort of inhuman noises and that’s how I woke up this morning.

But it was just a dream.

« Older posts

IHadCancer.com Best Cancer Blog Award Winner 2016, Runner-up 2017

IHadCancer.com Best Cancer Blog Awards

follow me

© 2024 Sam Alexandra Rose

Theme by Anders Noren — Up ↑